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Ed Harte had a clear message at our HSE Digital for Care Public Patient Partnership Advisory Group meeting #digitalforcare … [Read more...] about We listen first and build together

Margaret Donnellan highlighted 'It's Not What You Think '- the theme of 2026 Palliative Care Week, recounting her interview with me for The Echo. Palliative care can take place in many locations, home, nursing home, respite visits in hospice, etc.- and be delivered by a range of professionals, OT's dieticians, dietitians, speech therapists, etc. as well as clinicians. The focus is on living well. #ItsNotWhatYouThink #PalliativeCareWeek2026 … [Read more...] about ‘It’s Not what You Think’

'It's Not What You Think' is the key message of 2026 Palliative Care Week. Martin Steinmetz, The Southern Star editor, shares an interview in which I explained that Palliative Care can take place in many settings and is about living life well. … [Read more...] about ‘It’s Not What You Think’

A privilege to be on the Advisory Group of the HSE Digital for Care Patient Public Partnership. Our discussions highlighted the value of lived experience, co-design, collaboration and shared responsibility in shaping digital health services. … [Read more...] about HSE Digital for Care Patient Public Partnership Launch

It was a privilege to be invited to attend the FORCE Consortium meeting in Warsaw. FORCE (Fostering Oncology Research by Charities in Europe) is a European consortium of cancer charities committed to advancing pragmatic, patient-centered oncology research across Europe. That’s why, at the heart of the collaboration, lies a shared ambition: to co-create a Pragmatic Clinical Trial Programme by and for cancer charities. #PPI #pragmaticclinicaltrial #EuropeanWeekagainstCancer @Breakthrough Cancer … [Read more...] about FORCE Consortium meeting Warsaw 2026

Muireann O'Connor facilitated the Q&A session, sharing her own experience and reminding us that every life matters. Every day matters. … [Read more...] about Palliative Care Week Launch Q&A with Muireann

Cicely established the first hospice thanks to meeting David. David was an immigrant who thought he didn't have a legacy. The ripple effect of his life is felt around the world every day in the hospice movement … [Read more...] about Invitation to Palliative Care week launch 2025

Breakthrough Cancer Research Opens Groundbreaking Exhibition Cancer Revolution: Science, Innovation and Hope - The lived experience of families who went through the cancer experience shapes research directions, decisions, and successful outcome planning. https://breakthroughcancerresearch.ie/news/27164/ … [Read more...] about ‘Goodbye, My Son, book included in the exhibition

… [Read more...] about QR-Code of ‘Goodbye, My Son’ Audiobook