Blog

A privilege to be on the Advisory Group of the HSE Digital for Care Patient Public Partnership. Our discussions highlighted the value of lived experience, co-design, collaboration and shared responsibility in shaping digital health services. … [Read more...] about HSE Digital for Care Patient Public Partnership Launch

It was a privilege to be invited to attend the FORCE Consortium meeting in Warsaw. FORCE (Fostering Oncology Research by Charities in Europe) is a European consortium of cancer charities committed to advancing pragmatic, patient-centered oncology research across Europe. That’s why, at the heart of the collaboration, lies a shared ambition: to co-create a Pragmatic Clinical Trial Programme by and for cancer charities. #PPI #pragmaticclinicaltrial #EuropeanWeekagainstCancer @Breakthrough Cancer … [Read more...] about FORCE Consortium meeting Warsaw 2026

Muireann O'Connor facilitated the Q&A session, sharing her own experience and reminding us that every life matters. Every day matters. … [Read more...] about Palliative Care Week Launch Q&A with Muireann

Cicely established the first hospice thanks to meeting David. David was an immigrant who thought he didn't have a legacy. The ripple effect of his life is felt around the world every day in the hospice movement … [Read more...] about Invitation to Palliative Care week launch 2025

Breakthrough Cancer Research Opens Groundbreaking Exhibition Cancer Revolution: Science, Innovation and Hope - The lived experience of families who went through the cancer experience shapes research directions, decisions, and successful outcome planning. https://breakthroughcancerresearch.ie/news/27164/ … [Read more...] about ‘Goodbye, My Son, book included in the exhibition

… [Read more...] about QR-Code of ‘Goodbye, My Son’ Audiobook

Meeting the Tánaiste at this all Ireland Conference was an added bonus! … [Read more...] about Compassionate Communities in Palliative and End of Life Care Conference

New National Adult Palliative Care Policy It was an honour to be a PPI contributor to the National Adult Palliative Care Policy and to speak at the launch by the Minister for Health Stephen Donnelly. The additional funding promised by the Minister will enable improvements to the Palliative Care service that we as families experience. When a loved one has a life-limiting illness, is dying or we are going through bereavement, we will now have additional supports. … [Read more...] about

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